There are three tiers of data. UCI has a Data Use Registration Agreement (DURA) with the All of Us Research Program that provides UCI affiliates with institutional access to data in the Registered and Controlled Tiers.
The Public Tier
The Public Tier data contain only aggregate data with identifiers removed and are available using Data Snapshots and the Data Browser. This tier is available regardless of registration status.
The Registered Tier
The Registered Tier data contain individual level data from EHRs, wearables, and surveys, as well as physical measurements taken at the time of participant enrollment.
The Controlled Tier
In addition to the data in the Registered Tier, the Controlled Tier dataset contains genomic data in the form of whole genome sequencing (WGS) and genotyping arrays, previously suppressed demographic data fields from EHRs and surveys, and unshifted dates of events.
In order to access the Researcher Workbench Registered and Controlled Tiers, users will need to create a Researcher Workbench account online. These instructions provide a preview of the process.
Registering for access to the Researcher Workbench can be accomplished through four steps.
Step 1 – Create a Researcher Workbench Account
Complete your researcher profile, sign the Terms of Service, and agree to the Privacy Policy(11).
Step 2 – Verify your Identity
Verify your identity using Login.gov or ID.me. You may need to provide an SSN and a state-issued ID. These are secure services used by participating government agencies.
Researchers who live in the United States, have a social security number (SSN), and have a valid U.S. government-issued ID (e.g., U.S. territory- or state-issued ID) can use login.gov for identity verification. Otherwise, you must use ID.me. This article provide more information on this step.
Step 3 – Complete the Responsible Conduct of Research Training
This mandatory training, the Responsible Conduct of Research Training provides education on conducting responsible and ethical research with data from All of Us participants.
Step 4 – Sign the Data User Code of Conduct.
The Data User Code of Conduct is an agreement that outlines the program’s expectations for researchers. A preview of the agreement is available online.
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